Perspective Isn't All That Matters (Or - What Happens When Reality Ends Up At An Unexpected Angle)
You could say I have been learning a lot about “Perspective” recently. Both in the Photography sense and the “Life” sense.
Threaded through this blog post you will see some photographs by my favourite photographer – Derek Lee – which might give you a sense of how I am currently feeling about everything which has happened recently. (My world seems to have been tilted at a very strange angle.)
Where were we when I updated you last time??? Ah – yes – I remember now. I was the subject of an argument between two Doctors (GP and Oncologist) about an implant – and I was waiting for an appointment to see a Cardiologist, wasn't I???
Well, first the good news – my medication is now up-to-date. The implant was implanted last Wednesday and they have got the next one scheduled already.
I saw the Cardiologist last Monday. That was an interesting event. Dr Chin was very kind and respectful.
The strange thing was that when I was subjected to a Jump-lead Test (aka ECG) I was not offered a chaperone even though the human sticking the wires on me was a human of the male species – yet when the Cardiologist wanted to listen to my heart I was offered a chaperone (which one do you think might have involved me being topless???).
Anyway – Dr Chin (Cardiologist) scared me to death when he told me about the function of my heart - severely compromised – and the amount of leaks it has got in it (let's just say I think someone has taken my heart out and replaced it with a colander).
He did one thing which I was under the impression that would not be done due to my heart – he prescribed Beta-Blockers (reluctantly). He also prescribed another drug which ended up making me smile when I came to collect the prescription. More about that in a bit.
I was informed that he would not recommend Chemotherapy or Herceptin for me due to the fact I haven't got any reserve in my heart.
He also told me he wanted me to have both an MRI Scan and a 24hr Tape Test.
When I went to collect the prescription I was surprised to be shown two boxes (one box for each medicine) and a pill cutter. These were issued with the words “you will need to take half a tablet every morning – here is the cutter to cut them”. I had visions of having to explain myself to the Police as I was absolutely convinced that cutting your own drugs is illegal???
Anyway – that was Monday done and dusted.
On Tuesday I had an appointment with my new Heart Failure Nurse. She is very nice – she even explained things to me in a way that I could understand. (However, I am still trying to work out whether it is a very good idea to antagonise a poorly and malfunctioning heart – apparently one of the drugs I am now on is part of a group of drugs called “MRA” (the “A” stands for “Antagoniser”).
I have already told you about Wednesday.
Thursday was a blank day (I met up with a friend of mine and gave my ears a treat by letting them listen to an interesting accent which wasn't trying to give me Medical information).
Friday was a busy day. I started by going to the Social Media Cafe (my usual Friday haunt). Then I came back home for a meeting with the person I am working on my photography project with. After that I had a catchup appointment at my GP.
At my last appointment my GP had decided to try to do me a favour by telling me about a form he wanted to fill in on my behalf. I agreed to him doing this. On Friday he gave me said form and gave me a number to ring about it. Speaking to the DWP is soul-destroying at the best of times – Friday's conversations with them just made me lose the will to live.
I will keep the explanation as brief as possible – however, you will probably still end up getting confused.
I am currently on Disabled Living Allowance (DLA) because of my sight. The form the GP gave me was a special form so I could claim money due to my diagnosis. This meant I had to start from scratch as DLA is now being replaced by Personal Independence Payments (PIP).
Now – I had told every single being I spoke to at the DWP that I had this form. Half of them still asked me if I had only been given six months to live (no). Eventually I spoke to a very nice lady who obviously knew what she was doing because she talked me through the process and gave me an address to send the form to. I am now waiting to hear back.
Saturday I went to a wedding.
Sunday was Church then lunch with my Dad.
I was hoping to go into Leicester on Monday but it was too hot for me to get much further than the COOP near me before I decided to give up and come home.
Tuesday started off boring and then things livened up on my way to my Dad's house. I got a very strange voicemail message telling me I had to book an urgent appointment – no information regarding where and what for. I rang the number I was given and found myself agreeing to an MRI Scan this coming Tuesday. Had dinner with my Dad (which I cooked) and he gave me a lift home,
Yesterday I had a lovely morning with another of my friends.
This evening I am considering going to the Junkfood Project for my dinner but I will see how I feel.
This morning I received confirmation of both the MRI Scan appointment and the 24hr Tape Test appointments (Tape Test Monitor will be fitted on 21 September. I am now apparently in the sights of all three major hospitals in Leicester - Leicester Royal Infirmary for Oncologist, Glenfield Hospital for Cardiologist and (this is the strange one) Leicester General Hospital for the Tape Test.