You know something? It feels weird whenever someone tries to make me out to a campaigner, an activist, or a teacher on the subject of sight problems. I wouldn't class myself as any of those things for various reasons. I am sorry but – to me they all have various negative connotations. So how would I define myself??? Someone with sight problems who tries to educate people via writing about the challenges I face.
I know this blog probably wouldn't win any awards – I am quite surprised when people tell – not only me – other people how good they think my blog is in my earshot. These people are all people I admire in one way or another for the work they do in their own area of expertise.
Recently I appear to have started to branch out a bit – without making any conscious effort to. I have taken part in discussions on Twitter with an ever-revolving group of Police Officers (the discussion group is called “WeCops”) where I appear to have woken some of them up to the issues someone like me faces – as well as how they can alter things to make life easier for people like me. Put it this way – I was quite astonished (and a bit annoyed) to see a video clip of a new Police car with its blue flashing lights going. There was no sign of the annoying Alternating Flashing Headlights when the blue lights were flashing. Why did this video annoy me a bit??? The car was not one owned by Leicestershire Police (I think it was Greater Manchester Police).
The most exciting thing I have done though involves a publishing company run by two friends of mine (as well as something else I am planning to do slightly separate from that but along the same lines). Cynefin Road (the publishing company in question) publishes a free e-zine which I have contributed articles on various subjects to. This time I did something a bit different – I submitted a suggestion for a topic. I was pleasantly surprised when they took my idea up as even I admit it is a tricky subject to deal with if you don't want it to get hijacked by the well-meaning “sympathy” brigade. The subject was (Dis)Ability.
I submitted a poem (which I will share with you in a bit). The poem almost wrote itself in a way. The first lines came into my head without me thinking about them.
Although it is primarily about my experiences of my sight I have shown it to a couple of my friends - who have other disabilities - and they said that they recognised the feelings in it.
I am very pleased that – not only are Cynefin Road going to publish it but it is also going to appear in the next edition of “Choice” Magazine which is published by the great people at LCiL. To top it all off – if I am healthy enough (and the only two things which would stop me are another trip into hospital and/or my expiring full stop) I will be reading it at the “Choice UnLimited” Roadshow at the Tigers Ground, Welford Road, Leicester, on 10 April 2018.
For those of you who either cannot wait or cannot make it to the roadshow – don't worry – it is available below for you to read.
I am the forgotten, the ignored.
Please allow me to introduce myself,
I am your friendly local afterthought.
Never complaining as much as I probably should,
Only because I know you are so easily bored.
Trying to make my way through the neighbourhood,
The Manor of which you seem to have styled yourself as Lord.
Someone once said to me,
"It's your sight - it's your problem".
They don't understand so how can I blame them.
I can only hope to educate and make them see,
How they sometimes make life extremely difficult.
So much so that I had to grow up long before I became an adult.
My natural world is blurred and fluffy.
Put simply - without my glasses I cannot see clearly.
Even with them on I sometimes have to pay very dearly.
Grocery shopping can be a nightmare,
And when walking in the road I have to take great care.
However, and I mean this most sincerely,
Be very careful how you treat me.
I may not say very much,
But you will soon know,
Exactly how far I am prepared to let you go.
I see more than I say.
I go by actions - not words.
Please Sir, Madam, MP, or Lord of the Realm,
Are you going to help me,
Or just follow the herd???
I wish you wouldn't try to leave,
People like me in our personal version,
Of your nicely created Hell.
Trust me - given half a chance,
I could turn your life into a great expanse.
One filled with opportunities,
To help yourself as well as people like me.
There is a saying.
"No man is an island"!
We need to find a way of creating,
A world where everyone is treated equal.
Anything else is just like a house built of sand.
Reading this might have been tough.
But I bet you have never had it so rough,
As the forgotten, the ignored -
Never mind your friendly afterthought.
I might have a pair of glasses on my nose,
But them being some kind of miracle worker???
I think they must be on a "Go Slow".
I wish I could properly explain.
But I think you,
Would end up so confused,
That you would probably never speak to me again.
Yes - glasses help me see.
Including the discriminating con,
In those offers of "Buy one pair, get another pair free".
It is just not on.
Those offers are not open to me.
My glasses do help me see.
The gorgeous and the ugly people,
Who sit and stand around me.
The ones who help me automatically,
As well as the ones who watch me struggle.
I have problems with angles,
As well as bright lights and the dark.
I keep waiting for a human Angel,
To realise being me is not such a nice walk in the park.
So, next time we meet,
Instead of commenting and complaining,
Because I am inconveniencing you.
Offer to help me,
Or ask what I need.
Just do not try feigning,
Your interest in me.
I am a sensitive soul,
Who can speak for herself.
All you need to do is truly listen.
Hear me when I end up needing your help.
Don't take over,
Let me advise.
You are the disabled one,
When it comes to dealing with my sight.
I haven't usually got the energy,
For the required mental fight.
I am no longer intending to be,
The forgotten, the ignored.
Or even the friendly local afterthought.
I am going to be me.
What that entails - you will just have to wait and see